Becoming Paralyzed [Part 1]

Before October 2015, there was a time when I was standing on my own power. Though I was a victim of the polio epidemics of the ’50s, I was still very active and adventurous regardless my physical limitation. I played sports when I was young from American football, soccer, volleyball, racket ball, and fencing. I was also quite a good dancer. There was a even a time when I traipsed the trails of the high Sierras with a 70 pound backpack on my back. Those were the good ol’ days. I recall the highlights of my youth for all of you as a way of background.

1917812_102266723132227_1365532_n.jpgIf I remember right, I started to really slow down on 1998. By the time the millennium rolled in, I was riding an electric scooter (used by Seniors) up and down the streets of Manila as a way to compensate for not able to walk long distant anymore. Then I started to lose my balance more often and my legs would collapse with no warning. Then, one day as I was eating lunch, my left arm felt so weak that I could not lift the food up to my mouth. It was then that my wife and I went to the doctors. The word we got was that I was experiencing post-polio syndrome. It was a deteriorating muscular condition that been ailing many polio victims in their old age. Of course, I have long knew about post-polio and prepared for it. But I was not prepared for what happened next.

For now, I will leave it there for the next post. Meanwhile, I again give gratitude to all those who have already donated and I again make this sincere plea for help to raise the rest of the money needed to help go mobile.

https://www.gofundme.com/quadriplegic-needs-mobility

With much hope, thank you.

Johann Q.

How the donation money is going to be spent

Someone asked, “how is the donation money going to be spent?”

Switch It VersaGuide 2.pngBecause my hands/arms don’t work, I need to use chin controls. I found the VersaGuide EZ Light-touch compact proportional control from http://www.sunrisemedical.com [pls refer to image]. This controller with a mount that goes around a user’s neck is about $2000.

For an electric wheelchair, I needed one that had more stability [preferably something that will not easily topple backward] than a four wheel chair. I found 1 possibility – the Quickie Pulse 6 Mid Wheel Drive Power Wheelchair which is about $5000.

Quickie Pulse 6.png

The balance of the donations will cover (hopefully) shipping costs to the Philippines.

Of course, I am still canvassing for better prices.

If you are willing to help me go mobile, please click on link below.

https://www.gofundme.com/quadriplegic-needs-mobility

Again, I greatly appreciate everyone’s donation especially since I feel I am not that deserving of it. Thank you again.

Johann

Quadriplegic needs mobility

jq-bed-1.jpg

I am partially paralyzed and bedridden. In October 2015, I was admitted into the hospital because of incredible pain in my lower extremities and loss of motor functions. The doctors said my spine was being compressed. I underwent three difficult spinal chord operations and was in the hospital for four months. Though the operation was successful, the damage to my spine had still rendered me quadriparetic which means muscle weakness affecting all four limbs. Add this with my post polio condition, I am essentially stuck in bed. But I have a great desire to be independently mobile. Unfortunately, I am without health insurance, so, I essentially need to raise money for a chin controller and a safe electric wheelchair. Fortunately, my sister told me about GoFundMe.com and started a campaign. (link below)

https://www.gofundme.com/quadriplegic-needs-mobility

As a people person, I cannot socialize and do business until I get out of bed and get out there with everybody. So, I pray you could help me gain back my mobility and some independence.

Thank you very much.